+3157343224 info@lifraumeni.eu
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Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...
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Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
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Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
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Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
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Rue Montoyer 40, 1000 Brussels, Belgium
European cancer Patient Coalition ECPC
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Via Ginevra 4, 6900 Lugano, Zwitserland
Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome
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Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium
European support
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Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
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Alser Straße 4, 1090 Wenen, Oostenrijk
EUROPE Provides resources and connects patients to genetic specialists across Europe.
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