Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
European cancer Patient Coalition ECPC
Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome
Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium
European support
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
EUROPE Provides resources and connects patients to genetic specialists across Europe.
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