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ELFF, European Li Fraumeni Families Foundations.
Our goal is to help you, to find the best possible information, the best LFS experts, LFS centres/hospitals, Genetic centres and Li Fraumeni patients support groups. Each (LFS involved) organization can have their own page.
Use the Button–>  Add Listing to add your organization. (moderated)

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29 Avram Iancu, 450143 ZALAU ROMANIA
+40 (0)260 611214+40 (0)260 611214
+40 (0)726 248707+40 (0)726 248707
Centrul de Informare pentru Boli Genetice Rare  Centre for Information about Rare Genetic Disorde...
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Rue de Venise 3A, Monthey, Switzerland
+41 (0)24 473 20 10+41 (0)24 473 20 10
+41 (0)24 473 20 19
AEMO – Association Enfance et Maladies Orphelines Support group of Childhood and Orphan dis...
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ST LEONARDS 1590 AUSTRALIA
Contact: Ms Tam JOHNSTON Contact patients organisation: Ms Melanie BRU : +61 2 9819 1000
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London, UK
The George Pantziarka TP53 Trust is the UK’s only charity dedicated to supporting families with L...
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Via Manzoni 56, 20089 Rozzano milano
for more information: http://www.humanitas.it/malattie/tumori-cerebrali 
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Charitéplatz 1, 10117 Berlin
Contact: https://genetik.charite.de/metas/kontakt/?no_cache=1 Klinische und diagnostische Leis...
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9 Rue Guy Môquet, 94803 Villejuif, France
Reconnue d’utilité publique, la Fondation ARC est la 1e fondation française 100 % dédiée à la rec...
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292 East 3900 South Suite 1 Salt Lake City, Utah 84107
It’s amazing what we can do when we come together. Eight years ago my two children Drake and Reag...
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Wytemaweg 80, 3015 CN Rotterdam, Netherlands
ERFELIJKHEIDSVOORLICHTING EN ADVIES Bezoekadres: Erasmus MC Afdeling Klinische Genetica, kamer ...
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Via Orico 7, Bellinzona, Switzerland
Association in the Italian part of Switzerland for rare genetic diseases Head of organisation : M...
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Fetscherstraße 74 01307 Dresden
Willkommen am Institut für Klinische Genetik Unsere Forschungsschwerpunkte sind die Untersuchung ...
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Carrer de Sant Quintí, 89, 08041 Barcelona
El Servicio de Genética es el responsable del proceso analítico de diagnóstico de enfermedades ge...
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Polikliniek Klinische Genetica Openingstijden Maandag tot en met vrijdag van 8.30 tot 17.00 uur. ...
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Cockcroft Building SALFORD M5 4WT UNITED KINGDOM
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Palmoticeva 25A 11000 BELGRADE SERBIA
+381 11 26 00 444+381 11 26 00 444
+381 63 644 108+381 63 644 108
+381 11 26 00 444
ZVONCICA Childhood cancer parent organization Contact: Ms Irina BAN
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Algemeen adres Universitair Medisch Centrum Groningen Hanzeplein 1 Postbus 30.001 9700 RB Gro...
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Makrinitsas 16, Abelokipoi 115 22 Athens Greece
To Mellon – Association of people with genetic disorders Makrinitsas 16, Abelokipoi 115 22 ...
Showing 1 - 20 of 29 results

 
LFS SUPPORT EUROPE Placeholder
LFS SUPPORT EUROPE

No, Listing is free of charge

No, only if your organization is involved in the care of the li-Fraumeni families

No, please send a request to info@lifraumeni.eu

Your help is very welcome,
By making a donation
By running an awareness campaign
By sending webcontent

Ask for our information package.

Use your country map or the search boxes.

Use the Google translate buttons on the right-hand side

Yes, See the menubar under SOCIAL MEDIA

Yes, you can find the website with a lot of (Dutch) information on www.lifraumeni.nl

Please upload ‘your story’ on Youtube first and send us the url

Contact your local physician or specialist first, Every country has its own rules and possibilities.
You can find them on the EU map on the homepage ( if listed)

Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Newly identified germline variations in a key tumor suppressor [...]

By | January 14th, 2018|Categories: Geen categorie|Tags: |Comments Off on Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Why Do Elephants Rarely Get Cancer?

Despite the ridiculous rumor, sharks do get cancer. Elephants, [...]

By | October 24th, 2017|Categories: Geen categorie|Comments Off on Why Do Elephants Rarely Get Cancer?

Effect of metformin chemoprevention on metabolomics profiles in Li-Fraumeni Syndrome (LFS).

Background: LFS is a highly-penetrant, autosomal dominant, cancer predisposition disorder [...]

By | October 15th, 2017|Categories: Geen categorie|Comments Off on Effect of metformin chemoprevention on metabolomics profiles in Li-Fraumeni Syndrome (LFS).

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