CRISPR/CAS9 UPDATE: and LIFRAUMENI
CRISPR/CAS9 UPDATE: and LIFRAUMENI RISPR (clustered regularly interspaced short palindromic [...]
LFS Symposium Amsterdam AVL Hospital
Donderdag 13 december organiseert de Polikliniek Familiaire Tumoren van [...]
‘New Road Map’ for Cancer Detection in Li-Fraumeni Syndrome
Whole-body MRI (WBMRI) screening of patients carrying the germline [...]
Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients
Newly identified germline variations in a key tumor suppressor [...]
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ELFF, European Li Fraumeni Families Foundations.
Our goal is to help you, to find the best possible information, the best LFS experts, LFS centres/hospitals, Genetic centres and Li Fraumeni patients support groups. Each (LFS involved) organization can have their own page.
Use the Button–> Add Listing to add your organization. (moderated)
No, only if your organization is involved in the care of the li-Fraumeni families
No, please send a request to info@lifraumeni.eu
Your help is very welcome,
By making a donation
By running an awareness campaign
By sending webcontent
Ask for our information package.
Use your country map or the search boxes.
Use the Google translate buttons on the right-hand side
Yes, See the menubar under SOCIAL MEDIA
Yes, you can find the website with a lot of (Dutch) information on www.lifraumeni.nl
We are connected with LFSA (US) the Li Fraumeni Syndrome association.
Please upload ‘your story’ on Youtube first and send us the url
Contact your local physician or specialist first, Every country has its own rules and possibilities.
You can find them on the EU map on the homepage ( if listed)
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