Homer 2018-01-17T18:34:58+00:00

 
LFS SUPPORT EUROPE Placeholder
LFS SUPPORT EUROPE

ELFF, European Li Fraumeni Families Foundations.
Our goal is to help you, to find the best possible information, the best LFS experts, LFS centres/hospitals, Genetic centres and Li Fraumeni patients support groups. Each (LFS involved) organization can have their own page.
Use the Button–>  Add Listing to add your organization. (moderated)

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Charitéplatz 1, 10117 Berlin
Contact: https://genetik.charite.de/metas/kontakt/?no_cache=1 Klinische und diagnostische Leis...
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Via Orico 7, Bellinzona, Switzerland
Association in the Italian part of Switzerland for rare genetic diseases Head of organisation : M...
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9 Rue Guy Môquet, 94803 Villejuif, France
Reconnue d’utilité publique, la Fondation ARC est la 1e fondation française 100 % dédiée à la rec...
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ST LEONARDS 1590 AUSTRALIA
Contact: Ms Tam JOHNSTON Contact patients organisation: Ms Melanie BRU : +61 2 9819 1000
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Central Parkway Newcastle upon Tyne NE1 3BZ
Our Research Impact Our research is focused on delivering high-quality outputs of major biologica...
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Cockcroft Building SALFORD M5 4WT UNITED KINGDOM
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Polikliniek Klinische Genetica Openingstijden Maandag tot en met vrijdag van 8.30 tot 17.00 uur. ...
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Janusz-Korczak-Allee 12, 30173, Hanover, Germany
Christian Kratz, MD, is full professor in Pediatrics and Director of the Department of Pediatric...
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Palmoticeva 25A 11000 BELGRADE SERBIA
+381 11 26 00 444+381 11 26 00 444
+381 63 644 108+381 63 644 108
+381 11 26 00 444
ZVONCICA Childhood cancer parent organization Contact: Ms Irina BAN
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1515 Holcombe Blvd. Houston, Texas 77030
Research Focus The most common types of cancers associated with LFS are: Breast cancer Sarcomas B...
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Wytemaweg 80, 3015 CN Rotterdam, Netherlands
ERFELIJKHEIDSVOORLICHTING EN ADVIES Bezoekadres: Erasmus MC Afdeling Klinische Genetica, kamer ...
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Algemeen adres Universitair Medisch Centrum Groningen Hanzeplein 1 Postbus 30.001 9700 RB Gro...
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Makrinitsas 16, Abelokipoi 115 22 Athens Greece
To Mellon – Association of people with genetic disorders Makrinitsas 16, Abelokipoi 115 22 ...
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London, UK
The George Pantziarka TP53 Trust is the UK’s only charity dedicated to supporting families with L...
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101 Athalassas Av., App.204 2024 NICOSIA CYPRUS
Cyprus “One Dream One Wish” Association for Children with Cancer and Related Diseases...
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29 Avram Iancu, 450143 ZALAU ROMANIA
+40 (0)260 611214+40 (0)260 611214
+40 (0)726 248707+40 (0)726 248707
Centrul de Informare pentru Boli Genetice Rare  Centre for Information about Rare Genetic Disorde...
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Laarbeeklaan 101 | 1090 Brussel
+32 2 477 60 71+32 2 477 60 71
Centrum Medische Genetica UZ Brussel Laarbeeklaan 101 | 1090 Brussel CMG kliniek +32 2 477 60 71 ...
Showing 1 - 20 of 28 results

No, Listing is free of charge

No, only if your organization is involved in the care of the li-Fraumeni families

No, please send a request to info@lifraumeni.eu

Your help is very welcome,
By making a donation
By running an awareness campaign
By sending webcontent

Ask for our information package.

Use your country map or the search boxes.

Use the Google translate buttons on the right-hand side

Yes, See the menubar under SOCIAL MEDIA

Yes, you can find the website with a lot of (Dutch) information on www.lifraumeni.nl

Please upload ‘your story’ on Youtube first and send us the url

Contact your local physician or specialist first, Every country has its own rules and possibilities.
You can find them on the EU map on the homepage ( if listed)

Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Newly identified germline variations in a key tumor suppressor [...]

By | January 14th, 2018|Categories: Geen categorie|Tags: |Comments Off on Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Why Do Elephants Rarely Get Cancer?

Despite the ridiculous rumor, sharks do get cancer. Elephants, [...]

By | October 24th, 2017|Categories: Geen categorie|Comments Off on Why Do Elephants Rarely Get Cancer?

Effect of metformin chemoprevention on metabolomics profiles in Li-Fraumeni Syndrome (LFS).

Background: LFS is a highly-penetrant, autosomal dominant, cancer predisposition disorder [...]

By | October 15th, 2017|Categories: Geen categorie|Comments Off on Effect of metformin chemoprevention on metabolomics profiles in Li-Fraumeni Syndrome (LFS).

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