Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Newly identified germline variations in a key tumor suppressor [...]

By |January 14th, 2018|Categories: Geen categorie|Tags: |Comments Off on Tumor suppressor gene variants identified as cancer ‘double whammy’ for leukemia patients

Why Do Elephants Rarely Get Cancer?

Despite the ridiculous rumor, sharks do get cancer. Elephants, [...]

By |October 24th, 2017|Categories: Geen categorie|Comments Off on Why Do Elephants Rarely Get Cancer?

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ELFF, European Li Fraumeni Families Foundations.
Our goal is to help you, to find the best possible information, the best LFS experts, LFS centres/hospitals, Genetic centres and Li Fraumeni patients support groups. Each (LFS involved) organization can have their own page.
Use the Button–>  Add Listing to add your organization. (moderated)

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Carrer de Sant Quintí, 89, 08041 Barcelona
El Servicio de Genética es el responsable del proceso analítico de diagnóstico de enfermedades ge...
Makrinitsas 16, Abelokipoi 115 22 Athens Greece
To Mellon – Association of people with genetic disorders Makrinitsas 16, Abelokipoi 115 22 ...
29 Avram Iancu, 450143 ZALAU ROMANIA
+40 (0)260 611214+40 (0)260 611214
+40 (0)726 248707+40 (0)726 248707
Centrul de Informare pentru Boli Genetice Rare  Centre for Information about Rare Genetic Disorde...
101 Athalassas Av., App.204 2024 NICOSIA CYPRUS
Cyprus “One Dream One Wish” Association for Children with Cancer and Related Diseases...
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9 Rue Guy Môquet, 94803 Villejuif, France
Reconnue d’utilité publique, la Fondation ARC est la 1e fondation française 100 % dédiée à la rec...
292 East 3900 South Suite 1 Salt Lake City, Utah 84107
It’s amazing what we can do when we come together. Eight years ago my two children Drake and Reag...
Rue de Venise 3A, Monthey, Switzerland
+41 (0)24 473 20 10+41 (0)24 473 20 10
+41 (0)24 473 20 19
AEMO – Association Enfance et Maladies Orphelines Support group of Childhood and Orphan dis...
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Via Manzoni 56, 20089 Rozzano milano
for more information: http://www.humanitas.it/malattie/tumori-cerebrali 
Palmoticeva 25A 11000 BELGRADE SERBIA
+381 11 26 00 444+381 11 26 00 444
+381 63 644 108+381 63 644 108
+381 11 26 00 444
ZVONCICA Childhood cancer parent organization Contact: Ms Irina BAN
1515 Holcombe Blvd. Houston, Texas 77030
Research Focus The most common types of cancers associated with LFS are: Breast cancer Sarcomas B...
Plesmanlaan 121, Amsterdam, Nederland
The Netherlands Cancer Institute Plesmanlaan 121 1066CX Amsterdam The Netherlands The LiFe-Guard...
Central Parkway Newcastle upon Tyne NE1 3BZ
Our Research Impact Our research is focused on delivering high-quality outputs of major biologica...
Charitéplatz 1, 10117 Berlin
Contact: https://genetik.charite.de/metas/kontakt/?no_cache=1 Klinische und diagnostische Leis...
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Algemeen adres Universitair Medisch Centrum Groningen Hanzeplein 1 Postbus 30.001 9700 RB Gro...
Fetscherstraße 74 01307 Dresden
Willkommen am Institut für Klinische Genetik Unsere Forschungsschwerpunkte sind die Untersuchung ...
Showing 1 - 20 of 29 results


No, Listing is free of charge

No, only if your organization is involved in the care of the li-Fraumeni families

No, please send a request to info@lifraumeni.eu

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By running an awareness campaign
By sending webcontent

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Yes, you can find the website with a lot of (Dutch) information on www.lifraumeni.nl

Please upload ‘your story’ on Youtube first and send us the url

Contact your local physician or specialist first, Every country has its own rules and possibilities.
You can find them on the EU map on the homepage ( if listed)

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