Childhood Cancer International Europe - European Lifraumen Families Foundation

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European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

European Organisations

Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.

https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...

European Society for Medical Oncology (ESMO)

European Organisations

Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland

https://www.esmo.org/

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

European Rare Disease Research Coordinating and Support Action (ERICA)

European Organisations

Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN

https://erica-rd.eu/

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

EURORDIS - Rare Diseases Europe*

European Organisations

Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France

https://www.eurordis.org/

Advocates for patients with rare diseases, including Li-Fraumeni syndrome.

European Cancer Patient Coalition ECPC

European Organisations

Rue Montoyer 40, 1000 Brussels, Belgium

https://ecpc.org/

European cancer Patient Coalition ECPC

Rare Cancers Europe

European Organisations

Via Ginevra 4, 6900 Lugano, Zwitserland

https://www.rarecancerseurope.org/

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome

European Organisation for Research and Treatment of Cancer (EORTC)

European Organisations

Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium

https://www.eortc.org/

European support

European Society of Human Genetics (ESHG)

European Organisations

Alser Straße 4, 1090 Wenen, Oostenrijk

https://www.eshg.org/

EUROPE Provides resources and connects patients to genetic specialists across Europe.

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belangengroep li fraumeni

Patients organisations

Breek 23, Medemblik, Nederland 45.81 km

06573432240657343224

tomvdwal@gmail.com

http://www.lifraumeni.nl

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European Lifraumeni Families Foundation (ELFF)

li-fraumeni support

Oosterhaven 29, Medemblik, Nederland 46.45 km

06573432240657343224

info@lifraumeni.nl

http://www.lifraumeni.eu

The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting fam...

Netherlands Cancer Institute (Netherlands)

li-fraumeni support

Plesmanlaan 121, 1066 CX Amsterdam, Nederland 7.31 km

https://www.avl.nl/

Expertise centrum Li-Fraumeni

Dutch Hereditary Cancer Registry (STOET)

Registration organization

Rijnsburgerweg 10, 2333 AA Leiden, Nederland 37.9 km

https://www.stoet.nl/

In 1985, the Foundation for the Detection of Hereditary Tumors (StOET) established a nationw...

European Rare Disease Research Coordinating and Support Action (ERICA)

European Organisations

Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN 38.16 km

https://erica-rd.eu/

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

European Organisations

Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands. 87.95 km

https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...

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