European Society of Human Genetics (ESHG) - European Lifraumen Families Foundation

European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

European Organisations

Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.

https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...

European Society for Medical Oncology (ESMO)

European Organisations

Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland

https://www.esmo.org/

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

European Rare Disease Research Coordinating and Support Action (ERICA)

European Organisations

Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN

https://erica-rd.eu/

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

EURORDIS - Rare Diseases Europe*

European Organisations

Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France

https://www.eurordis.org/

Advocates for patients with rare diseases, including Li-Fraumeni syndrome.

European Cancer Patient Coalition ECPC

European Organisations

Rue Montoyer 40, 1000 Brussels, Belgium

https://ecpc.org/

European cancer Patient Coalition ECPC

Rare Cancers Europe

European Organisations

Via Ginevra 4, 6900 Lugano, Zwitserland

https://www.rarecancerseurope.org/

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome

European Organisation for Research and Treatment of Cancer (EORTC)

European Organisations

Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium

https://www.eortc.org/

European support

Childhood Cancer International Europe

European Organisations

Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland

https://www.childhoodcancerinternational.org/

Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.

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Medical University of Vienna

li-fraumeni support

Währinger Gürtel 18-20, 1090 Wien, Austria 0.83 km

Their Department of Medical Genetics provides specialized services for LFS patients.

University Hospital of Bratislava

li-fraumeni support

Limbová 5, Bratislava, Slovakia 54.63 km

https://www.unb.sk/

Their Department of Medical Genetics provides counseling for hereditary cancer syndromes

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