+3157343224 info@lifraumeni.eu

European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

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European Organisations
Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
10 Geert Grooteplein Zuid Nijmegen Gelderland 6525 GA NL
https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, including Li-Fraumeni syndrome. It provides expertise, resources, and collaboration for patients and healthcare professionals.

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European Society for Medical Oncology (ESMO)
European Organisations
Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland
https://www.esmo.org/
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
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European Rare Disease Research Coordinating and Support Action (ERICA)
European Organisations
Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN
https://erica-rd.eu/
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
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EURORDIS - Rare Diseases Europe*
European Organisations
Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France
https://www.eurordis.org/
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
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European Cancer Patient Coalition ECPC
European Organisations
Rue Montoyer 40, 1000 Brussels, Belgium
https://ecpc.org/
European cancer Patient Coalition ECPC
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Rare Cancers Europe
European Organisations
Via Ginevra 4, 6900 Lugano, Zwitserland
https://www.rarecancerseurope.org/
Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome
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European Organisation for Research and Treatment of Cancer (EORTC)
European Organisations
Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium
https://www.eortc.org/
European support
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Childhood Cancer International Europe
European Organisations
Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland
https://www.childhoodcancerinternational.org/
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
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European Society of Human Genetics (ESHG)
European Organisations
Alser Straße 4, 1090 Wenen, Oostenrijk
https://www.eshg.org/
EUROPE Provides resources and connects patients to genetic specialists across Europe.
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Childhood Cancer International Europe
European Organisations
Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland 87.95 km
https://www.childhoodcancerinternational.org/
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
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Netherlands Cancer Institute (Netherlands)
li-fraumeni support
Plesmanlaan 121, 1066 CX Amsterdam, Nederland 91.77 km
https://www.avl.nl/
Expertise centrum Li-Fraumeni
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