+3157343224 info@lifraumeni.eu

European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

Verified
radboud.png
European Organisations
Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
10 Geert Grooteplein Zuid Nijmegen Gelderland 6525 GA NL
https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, including Li-Fraumeni syndrome. It provides expertise, resources, and collaboration for patients and healthcare professionals.

Share
Bladwijzer
Filter
Sort by: Helpfulness
Write a Review
Sort by: Votes
radboud.png 2 months ago
  • You must to post comments
Showing 1 result
Filter
Sort by: Newest First
List Grid Map
esmo-logo.png
European Society for Medical Oncology (ESMO)
European Organisations
Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland
https://www.esmo.org/
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
erica.logo.png
European Rare Disease Research Coordinating and Support Action (ERICA)
European Organisations
Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN
https://erica-rd.eu/
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
eujrordis.png
EURORDIS - Rare Diseases Europe*
European Organisations
Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France
https://www.eurordis.org/
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
ecpc.png
European Cancer Patient Coalition ECPC
European Organisations
Rue Montoyer 40, 1000 Brussels, Belgium
https://ecpc.org/
European cancer Patient Coalition ECPC
rare-cancers.png
Rare Cancers Europe
European Organisations
Via Ginevra 4, 6900 Lugano, Zwitserland
https://www.rarecancerseurope.org/
Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome
eEORTC).png
European Organisation for Research and Treatment of Cancer (EORTC)
European Organisations
Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium
https://www.eortc.org/
European support
childhood.png
Childhood Cancer International Europe
European Organisations
Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland
https://www.childhoodcancerinternational.org/
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
eshg.png
European Society of Human Genetics (ESHG)
European Organisations
Alser Straße 4, 1090 Wenen, Oostenrijk
https://www.eshg.org/
EUROPE Provides resources and connects patients to genetic specialists across Europe.
Showing 8 results
Filter
List Grid Map
childhood.png
Childhood Cancer International Europe
European Organisations
Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland 87.95 km
https://www.childhoodcancerinternational.org/
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
avl.png
Netherlands Cancer Institute (Netherlands)
li-fraumeni support
Plesmanlaan 121, 1066 CX Amsterdam, Nederland 91.77 km
https://www.avl.nl/
Expertise centrum Li-Fraumeni
Showing 2 results