Oosterhaven 29, Medemblik, Nederland
The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting fam...
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This network provides support and information for individuals with hereditary cancer syndromes, i...
A UK-based organization offering support, information, and resources for individuals and families...
Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...
Patient organisation
Expertise centrum Li-Fraumeni
Comprehensive cancer center with LFS expertise
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
Funds research into rare cancer syndromes and provides information resources
Coordinates care for rare genetic disorders
Offers genetic services for hereditary conditions.
Provides genetic testing and counseling.
Their Division of Genetics offers services for hereditary cancer syndromes.
Provides genetic services for cancer syndromes.
Offers genetic counseling and testing for hereditary cancer predisposition
Their Department of Medical Genetics provides counseling for hereditary cancer syndromes
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
European cancer Patient Coalition ECPC