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Oosterhaven 29, Medemblik, Nederland
The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting fam...
Has a clinical genetics department that handles rare cancer syndromes
Funds research into rare cancer syndromes and provides information resources
Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.
FRANCE Specializes in genetic counseling for hereditary cancer syndromes
Their Center for Genomic Medicine specializes in hereditary cancer syndromes.
In 1985, the Foundation for the Detection of Hereditary Tumors (StOET) established a nationw...
European cancer Patient Coalition ECPC
Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium
European support
Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.
Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.
Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...
Provides guidelines and connects professionals specializing in hereditary cancer syndromes
EUROPE Provides resources and connects patients to genetic specialists across Europe.
Advocates for patients with rare diseases, including Li-Fraumeni syndrome.
Patient organisation
Offers specialized genetic counseling and research programs for hereditary cancer syndromes inclu...
Offers genetic services for rare cancer predisposition syndrome
Has a medical genetics department specializing in hereditary cancer syndromes
Offers genetic counseling and testing for hereditary cancer predisposition