Coordinates care for rare genetic disorders
The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting families affected by Li-Fraumeni syndrome across Europe. Our mission is to serve as a central information hub, offering valuable resources, the latest developments, and practical guidance on screening protocols. By connecting families with local organizations and providing a platform for knowledge-sharing, ELFF strives to foster a strong, informed community that can navigate the challenges of Li-Fraumeni syndrome with confidence and hope. Together, we aim to improve care, raise awareness, and enhance the quality of life for those impacted by this rare genetic condition.
Stichting Belangengroep Li-Fraumeni Families
European Li-Fraumeni Families Foundation ( ELFF)
Chamber of commerce 54841917 The Netherlands
Established and maintained by the Stichting Diagnose Kanker (SDK). This is a registered and government-recognized foundation with ANBI (Public Benefit Organization) status.
Offers genetic counseling for cancer predisposition syndromes
Offers genetic counseling and testing for hereditary cancer syndromes.
Has a medical genetics department specializing in hereditary cancer syndromes
Houses the Department of Cancer Epidemiology and Genetics
Offers specialized genetic counseling and research programs for hereditary cancer syndromes including Li-Fraumeni.
Funds research into rare cancer syndromes and provides information resources
Provides genetic testing and counseling services.
Their Department of Medical Genetics provides comprehensive testing and counseling for Li-Fraumeni families.
Their Center for Genomic Medicine specializes in hereditary cancer syndromes.
Houses the Institute for Human Genetics that provides services for hereditary disorders.
Provides genetic counseling services for hereditary cancer syndromes.
Provides genetic services for cancer syndromes.
Offers genetic counseling and testing for hereditary cancer predisposition
Their Department of Medical Genetics provides counseling for hereditary cancer syndromes
A UK-based organization offering support, information, and resources for individuals and families affected by Li-Fraumeni syndrome.
Offers genetic services for rare cancer predisposition syndrome
Comprehensive cancer center with LFS expertise
Houses the Clinical Genetics department that provides services for Li-Fraumeni patients.
Their Division of Genetics offers services for hereditary cancer syndromes.
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