A UK-based organization offering support, information, and resources for individuals and families affected by Li-Fraumeni syndrome.
The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting families affected by Li-Fraumeni syndrome across Europe. Our mission is to serve as a central information hub, offering valuable resources, the latest developments, and practical guidance on screening protocols. By connecting families with local organizations and providing a platform for knowledge-sharing, ELFF strives to foster a strong, informed community that can navigate the challenges of Li-Fraumeni syndrome with confidence and hope. Together, we aim to improve care, raise awareness, and enhance the quality of life for those impacted by this rare genetic condition.
Stichting Belangengroep Li-Fraumeni Families
European Li-Fraumeni Families Foundation ( ELFF)
Chamber of commerce 54841917 The Netherlands
Established and maintained by the Stichting Diagnose Kanker (SDK). This is a registered and government-recognized foundation with ANBI (Public Benefit Organization) status.
Offers genetic services for hereditary conditions.
Houses the Clinical Genetics department that provides services for Li-Fraumeni patients.
Has a medical genetics department specializing in hereditary cancer syndromes
Provides genetic testing and counseling services.
Their Division of Genetics offers services for hereditary cancer syndromes.
This network provides support and information for individuals with hereditary cancer syndromes, including LFS, in Italy.
Offers genetic counseling and testing for hereditary cancer predisposition
Provides genetic testing and counseling for families with Li-Fraumeni syndrome.
Has a clinical genetics department that handles rare cancer syndromes
Houses the Department of Cancer Epidemiology and Genetics
Comprehensive cancer center with LFS expertise
Their Department of Medical Genetics provides comprehensive testing and counseling for Li-Fraumeni families.
Provides genetic testing and counseling.
Their Center for Genomic Medicine specializes in hereditary cancer syndromes.
Their Department of Medical Genetics provides counseling for Li-Fraumeni families.
Their Department of Medical Genetics provides counseling for hereditary cancer syndromes
Poland
Offers genetic diagnostics and counseling for hereditary cancer syndromes
Provides genetic services for cancer syndromes.
Provides genetic counseling services for hereditary cancer syndromes.
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