EURORDIS - Rare Diseases Europe* - European Lifraumen Families Foundation

European Organisations

Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland

Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.

European Organisations

Rue Montoyer 40, 1000 Brussels, Belgium

European cancer Patient Coalition ECPC

European Organisations

Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium

European support

European Organisations

Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

European Organisations

Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...

European Organisations

Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

European Organisations

Alser Straße 4, 1090 Wenen, Oostenrijk

EUROPE Provides resources and connects patients to genetic specialists across Europe.

Rare Cancers Europe

European Organisations

Via Ginevra 4, 6900 Lugano, Zwitserland

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome