The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting families affected by Li-Fraumeni syndrome across Europe. Our mission is to serve as a central information hub, offering valuable resources, the latest developments, and practical guidance on screening protocols. By connecting families with local organizations and providing a platform for knowledge-sharing, ELFF strives to foster a strong, informed community that can navigate the challenges of Li-Fraumeni syndrome with confidence and hope. Together, we aim to improve care, raise awareness, and enhance the quality of life for those impacted by this rare genetic condition.
Stichting Belangengroep Li-Fraumeni Families
European Li-Fraumeni Families Foundation ( ELFF)
Chamber of commerce 54841917 The Netherlands
Established and maintained by the Stichting Diagnose Kanker (SDK). This is a registered and government-recognized foundation with ANBI (Public Benefit Organization) status.
