European Cancer Patient Coalition ECPC

EUROPE

Provides resources and connects patients to genetic specialists across Europe.

Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.

European support

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome

Advocates for patients with rare diseases, including Li-Fraumeni syndrome.

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, including Li-Fraumeni syndrome. It provides expertise, resources, and collaboration for patients and healthcare professionals.