European Cancer Patient Coalition ECPC

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, including Li-Fraumeni syndrome. It provides expertise, resources, and collaboration for patients and healthcare professionals.

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

Advocates for patients with rare diseases, including Li-Fraumeni syndrome.

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome

European support

Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.

EUROPE

Provides resources and connects patients to genetic specialists across Europe.