European Cancer Patient Coalition ECPC - European Lifraumen Families Foundation

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Childhood Cancer International Europe

European Organisations

Kraijenhoffstraat 137A, 1018 RG Amsterdam, Nederland

https://www.childhoodcancerinternational.org/

Connects families affected by childhood cancers, including those caused by Li-Fraumeni syndrome.

European Organisation for Research and Treatment of Cancer (EORTC)

European Organisations

Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium

https://www.eortc.org/

European support

European Rare Disease Research Coordinating and Support Action (ERICA)

European Organisations

Leiden University Medical Center P.O. Box 9600 2300 RC LEIDEN

https://erica-rd.eu/

Coordinates research initiatives across Europe for rare diseases including Li-Fraumeni syndrome.

European Reference Network on Genetic Tumour Risk Syndromes (ERN GENTURIS)

European Organisations

Radboud University Medical Center, Geert Grooteplein-Zuid 10, 6525 GA Nijmegen, The Netherlands.

https://www.genturis.eu

Description: ERN GENTURIS is a European network focused on genetic tumor risk syndromes, includin...

European Society for Medical Oncology (ESMO)

European Organisations

Via Ginevra 4, 6900 Lugano, Ticino, Zwitserland

https://www.esmo.org/

Provides guidelines and connects professionals specializing in hereditary cancer syndromes

European Society of Human Genetics (ESHG)

European Organisations

Alser Straße 4, 1090 Wenen, Oostenrijk

https://www.eshg.org/

EUROPE Provides resources and connects patients to genetic specialists across Europe.

EURORDIS - Rare Diseases Europe*

European Organisations

Plateforme Maladies Rares, 96 rue Didot, 75014 Paris, France

https://www.eurordis.org/

Advocates for patients with rare diseases, including Li-Fraumeni syndrome.

Rare Cancers Europe

European Organisations

Via Ginevra 4, 6900 Lugano, Zwitserland

https://www.rarecancerseurope.org/

Advocates for patients with rare cancers, including those caused by Li-Fraumeni syndrome

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European Organisation for Research and Treatment of Cancer (EORTC)

European Organisations

Avenue Emmanuel Mounier 83/11, 1200 Sint-Lambrechts-Woluwe, Brussels, Belgium 6.03 km

https://www.eortc.org/

European support

University Hospital Leuven

li-fraumeni support

Herestraat 49, 3000 Leuven, Belgium 21.98 km

https://www.uzleuven.be/

Has a Center for Human Genetics with expertise in hereditary cancer syndromes.

CHRU Lille - Genetic Clinic*

li-fraumeni support

2 Avenue Oscar Lambret, 59000 Lille, France 97.34 km

https://www.chu-lille.fr/

FRANCE Specializes in genetic counseling for hereditary cancer syndromes

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