The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting families affected by Li-Fraumeni syndrome across Europe. Our mission is to serve as a central information hub, offering valuable resources, the latest developments, and practical guidance on screening protocols. By connecting families with local organizations and providing a platform for knowledge-sharing, ELFF strives to foster a strong, informed community that can navigate the challenges of Li-Fraumeni syndrome with confidence and hope. Together, we aim to improve care, raise awareness, and enhance the quality of life for those impacted by this rare genetic condition.
Stichting Belangengroep Li-Fraumeni Families
European Li-Fraumeni Families Foundation ( ELFF)
Chamber of commerce 54841917 The Netherlands
Established and maintained by the Stichting Diagnose Kanker (SDK). This is a registered and government-recognized foundation with ANBI (Public Benefit Organization) status.
Their Center for Genomic Medicine specializes in hereditary cancer syndromes.
Offers genetic services for rare cancer predisposition syndrome
Offers specialized genetic counseling and research programs for hereditary cancer syndromes including Li-Fraumeni.
Houses the Clinical Genetics department that provides services for Li-Fraumeni patients.
Has a medical genetics department specializing in hereditary cancer syndromes
Provides genetic testing and counseling for families with Li-Fraumeni syndrome.
Poland
Offers genetic diagnostics and counseling for hereditary cancer syndromes
FRANCE
Specializes in genetic counseling for hereditary cancer syndromes
Their Department of Medical Genetics provides comprehensive testing and counseling for Li-Fraumeni families.
Their Department of Medical Genetics provides specialized services for LFS patients.
Offers genetic counseling services for hereditary cancer syndromes.
Houses the Department of Cancer Epidemiology and Genetics
Offers genetic counseling and testing for hereditary cancer syndromes.
Has a clinical genetics department that handles rare cancer syndromes
Provides genetic counseling services for hereditary cancer syndromes.
Can connect patients with specialized genetic services for Li-Fraumeni syndrome.
Their Hematology, Oncology and Transfusion Medicine Center provides services for hereditary cancer syndromes.
Offers genetic counseling for cancer predisposition syndromes
Houses the Institute for Human Genetics that provides services for hereditary disorders.