The European Li-Fraumeni Families Foundation (ELFF) is dedicated to empowering and supporting families affected by Li-Fraumeni syndrome across Europe. Our mission is to serve as a central information hub, offering valuable resources, the latest developments, and practical guidance on screening protocols. By connecting families with local organizations and providing a platform for knowledge-sharing, ELFF strives to foster a strong, informed community that can navigate the challenges of Li-Fraumeni syndrome with confidence and hope. Together, we aim to improve care, raise awareness, and enhance the quality of life for those impacted by this rare genetic condition.
Stichting Belangengroep Li-Fraumeni Families
European Li-Fraumeni Families Foundation ( ELFF)
Chamber of commerce 54841917 The Netherlands
Established and maintained by the Stichting Diagnose Kanker (SDK). This is a registered and government-recognized foundation with ANBI (Public Benefit Organization) status.
Has a clinical genetics department that handles rare cancer syndromes
Funds research into rare cancer syndromes and provides information resources
FRANCE
Specializes in genetic counseling for hereditary cancer syndromes
Their Center for Genomic Medicine specializes in hereditary cancer syndromes.
Offers specialized genetic counseling and research programs for hereditary cancer syndromes including Li-Fraumeni.
Offers genetic services for rare cancer predisposition syndrome
Has a medical genetics department specializing in hereditary cancer syndromes
Offers genetic counseling and testing for hereditary cancer predisposition
Comprehensive cancer center with LFS expertise
Offers genetic counseling services for hereditary cancer syndromes.
Can connect patients with specialized genetic services for Li-Fraumeni syndrome.
Provides genetic testing and counseling for families with Li-Fraumeni syndrome.
This network provides support and information for individuals with hereditary cancer syndromes, including LFS, in Italy.
Houses the Clinical Genetics department that provides services for Li-Fraumeni patients.
Provides genetic testing and counseling services.
A UK-based organization offering support, information, and resources for individuals and families affected by Li-Fraumeni syndrome.
Coordinates care for rare genetic disorders
Poland
Offers genetic diagnostics and counseling for hereditary cancer syndromes
Houses the Department of Cancer Epidemiology and Genetics